Tag Archives: John Lee Clark

Disability Pedagogy: What Disabled People Know and the Rest of Us Must Learn

students of color at Gallaudet University in a ProTacticle workshop

Debbie says:

We have long known how disabled people’s need for ingenuity and bold solutions have unintended positive consequences for the rest of us. Wheelchair ramps are boons to able-bodied people pushing strollers, or travelers (remember travelers?) with suitcases. Closed captioning is invaluable to non-native speakers and people with auditory processing challenges. Since COVID-19 and shelter-in-place up-ended the world, disabled people have been repeatedly saying, “It’s about time you recognized what we have needed forever, and what we know.” This is nowhere more true than in education and distance pedagogy.

Enter “How to Teach with Text: Platforming Down as Disability Pedagogy” by Michele Friedner, Rebecca Sanchez, and Mara Mills, published in Avidly: A channel of the Los Angeles Review of Books.

As Aimi Hamraie argues on their Accessible Teaching in the Time of COVID-19 webpage, “disabled people are leading survival practice in apocalyptic times.” When it became clear by early summer that the pandemic was accelerating in the United States,  the Accessible Campus Action Alliance called for virtual modes of education to continue into the next school year as a matter of health and equity. …

Among disability scholars, most discussions of remote teaching have emphasized workarounds and accessibility for multimedia software like Zoom. We are interested, instead, in the possibilities offered through “platforming down,” or paring down the technology we use for online classes. …

Without being prescriptive about text-based teaching and learning—or distance education—we relay here our enthusiasm for writing together, DeafBlind pedagogy, and teaching things with text.

The article’s authors are building off the work of DeafBlind activist and teacher John Lee Clark, with whom some of them have taken classes.

The video above is one of many on YouTube which describe and demonstrate ProTactile.

Describing Clark’s course “Introduction to Protactile Theory” Mara Mills says:

Like any good syllabus, his had a captivating sequence: he opened with DeafBlind experience and critical theory, unsettling newcomers like me in the best possible way before proceeding to ethnographic and other synthetic explanations, and finally introducing some basic principles of the Protactile language. (This language is truly “born tactile” and hence distinct from translations of American Sign Language to the modality of touch.) Here, for instance, is a tiny gem from one of the first pieces we read, “My Dream House,” an unpublished essay written by Clark that transported us immediately into DeafBlind space and Protactile-design-to-come:

… Clark points out that text-based communication, even in the name of access, is one way that “English has colonized every part of our lives.” It was my turn, as an English-speaker (and typer), to only be “partially included” at the moments when Clark gestured toward other Protactile classes, other in-person events that are “wildly and joyously tactile” in their foregrounding of Protactile sign language as a language.

Mills, following Clark, wants to explore moving away from Zoom and Zoom-like classes to deeply engaging text conversations via listservs and the like, but her students are less interested.

Rebecca Sanchez dives deeper into the text-as-pedagogy experience:

One of the benefits of working in text-based formats that this semester highlighted for me is the flexibility they build into interactions, a flexibility that makes space for us to engage at different paces, for different durations, with different amounts of repetition, based on our own needs and preferences. When I type out a lecture, students can move through it at their own pace, pausing when they need a break (or are called away by caretaking or other responsibilities), returning as often as desired to the parts that are confusing or particularly interesting. Communicating in text (even in “real time”) also slows the speed of interaction. The pauses it inserts (especially notable at a moment where such emphasis is placed on the value of speed) offer opportunities to reflect. … These pauses (the equivalent of the blank space around the words on the pages of a poem) are much more difficult to create in a physical classroom. … I often break up discussions by inserting writing into those physical interactions, stopping class to give students a few minutes to record their thoughts so they are better able to engage in discussion. But there are limitations on the level of personalization that can occur when we are all proceeding at the same pace.

Communicating through text is not universally accessible; nothing is. But for some, it provides an opportunity to more fully organize thoughts before presenting them.

I had never heard of Protactile before I read this article, and had never thought about the value of teaching through text. But I struggle several times a week with facilitating and attending Zoom meetings for a political movement where people process at different speeds, have different priorities, and often find ourselves at cross-purposes. And I certainly know in my own life the value of pausing to think about what I want to say–often, I know it because I haven’t done it. Sometimes we do communicate best with emails and editable documents. So all of this strikes chords for me.

The authors conclude:

Whatever forms we as individuals or our institutions decide our classes will take in the fall, then, it is vital that we not justify those choices through repetition of the ableist misconception that one can only effectively teach, learn, think, or fully be in synchronous speech. The idea that we cannot meaningfully connect with our students and with one another through text devalues the interactions and lives of people who have been forming relationships in precisely those ways long before COVID-19. And it is simply false.

Thanks to @edmondchang for finding the article on Twitter, where you can follow me @SpicejarDebbie

 

 

Distantism and Exclusion: Thoughts from the Deaf and Deaf-Blind

[DISPLAY_ULTIMATE_SOCIAL_ICONS]

Debbie says:

I was not aware of deaf-blind poet John Lee Clark until the amazing jesse-the-k posted this quotation from him.

Each form of social bigotry has its distinctive personality and its unique set of intertwining evils. So I would like to dwell on the concept of distantia, or a standing apart, which lies at the heart of distantism. We already have a Protactile* word that describes people who pull away from touch, who refuse to connect. It is an attitude and a behavior. Many hearing and sighted societies prize it highly, and their members seek to maintain physical distance, however thin those margins may be. Their rulers and heroes stand alone–the more remote they are, the more highly esteemed they are. Even when the less privileged are squeezed closer together due to poverty, exploitation, or as punishment, distantism manifests itself in the long lines, tight cells or dubicles, and above all, their being removed out of sight and hearing. For all the hype around its ability to connect the world, technology has often served to isolate people in every other way.

The first sentence is worth enshrining on city plaques and statues (after all, we’re going to need some new ones.)

For the rest, I do not 100% agree with him about technology and distance (I don’t 100% disagree either). The rest of it rings so true to me, at least in the U.S.: we are so committed to physical distance, to the remoteness of “rulers and heroes.” He doesn’t quite say that the close quarters of “poverty, exploitation [and] punishment” are part of the ways we revere distance, but he surely implies it.  Lots more of his thoughts about distantism at the link, including ever-crucial thoughts about deaf-blind as teachers of the deaf-blind. Nothing about us without us.

I hadn’t thought about The Miracle Worker in years, if not decades. Just having the title pop into my mind in 2017, when I was reading this, I could instantly see the way I would critique that work now (even though I loved it as a child). For those who don’t know it, it’s a play and film from 1963 and movie about Anne Sullivan, who taught Helen Keller. The play is based on the autobiography of Keller, but centers Sullivan. Keller was the world’s most famous deaf-blind person, and a strong political activist: in the 1950s, I didn’t know what was wrong with making the story about Anne Sullivan. But I do now.

***

Before I got around to blogging this, jesse-the-k added another layer by linking to Matthew Rodriguez’ “A Sign of Trouble: The HIV Crisis in the Deaf Community.” This article discusses high HIV rates among Deaf people, and tells a couple of stories, including this horrifying one:

In July 2016, [Darrin] Smith, who identifies as black, gay and deaf, presented to a doctor seeking pre-exposure prophylaxis. Despite his knowledge of PrEP, the HIV infections rates in the black queer community and his willingness to take the drug, one thing stood in his way: a hearing doctor. The doctor told Smith that Deaf people should not be having sex.

“I was upset, I was angry,” Smith told INTO. “Just because I’m deaf does not mean I’m broken. It does not mean I cannot function as a normal human being.”

Let’s be clear. There is absolutely no reason why a Deaf person should not have whatever kind of sex he/she/they want, and absolutely no reason a Deaf person should not have access to PrEP.

Those in the community realize that this complicated problem requires complicated solutions. Smith and [deaf HIV-positive man Matthew] Byrd both expressed the deaf community itself need more education about the ways that race, sexuality and HIV status intersect with their hearing status.

“It’s really hard to talk about these things. It’s hard because there’s a layer of racism, there’s a layer of homophobia,” Smith said. “There’s a level of intersectionality that has to be talked about.”

Byrd said that dealing with HIV stigma among the deaf community has meant there are few spaces where he can be himself.

“The only place I feel that there’s any kind of mutual respect is the deaf, gay, POZ community,” he said. However, Byrd said, they have no national HIV organization to foster community or educate others.

Thinking about the struggle of Deaf people to get reasonable HIV care leads back to distantism. Intersectionality, such a buzzword for the last several years, speaks to at least acknowledging, if not addressing, distantism. The HIV medical community must acknowledge the specific needs of Deaf people, and bring Deaf educators under its umbrella, just as all of us need to acknowledge the places where we use distantism to keep other people away from the resources, care, and agency they need.

Thanks, Jesse-the-K!